World Lupus Day 2015
It’s that time of year again when I reflect on having lupus, on both how it sucks and how lucky I am compared with many other sufferers. I am aware every day of having lupus, of the effect it has on my life, of the constraints and limits it places on me, but also of the many common lupus symptoms I don’t suffer.
I was diagnosed with systemic lupus erythematosus in 2007 after about a year and a half of tests and investigations into why I was so tired all the time. After diagnosis I realised that there had been other symptoms too that pointed to lupus, but it hadn’t occurred to me they were abnormal. By that I mean things like having cold hands and feet all the time (a sign of poor circulation), dry mouth and eyes, flu-like symptoms such as muscle aches. And there were things I didn’t put together until after diagnosis: exposure to sunlight makes me headachy, dizzy and nauseous far faster than sunstroke would, and strong sunlight brings me out in a rash before it burns me.
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We’ve had a really lovely couple of weeks weather-wise and I’ve been trying my best to make the most of it, despite having that pesky work thing to go to. I’ve spent most lunchtimes outdoors and those bits of evening or weekend I’m not outdoors have found me sat near a window enjoying the long light hours.


It’s been another genuinely good reading month. Oddly enough, my favourite title was one I didn’t review at the time – The Sleeper and the Spindle by Neil Gaiman, illustrated by Chris Riddell – so I thought I would write a little about it now. It’s a beautifully told and even more beautifully illustrated retelling of the Sleeping Beauty story, with some other fairy tales mixed in for good measure and some major deviations from what you might remember/expect. It stars a kickass queen who sets out sword in hand to save the neighbouring land. I really loved Gaiman’s language and the ways he mixes the familiar with brand new ideas but what really made this special was the artwork. It’s all drawn in black and gold, elaborate and, well, gorgeous. I highly recommend you seek it out.
Thank goodness for